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Lulu is the dictionary definition of brave.

Josi, Lulu's Mum

Brave children like Lulu need your support.

More than 950 Australian families are affected by a childhood cancer diagnosis every year. Josi, Lulu's mum, never throught it would happen to them.

But cancer doesn't discriminate.  

Josi's world came crashing down when she heard the worst sentence a parent could ever hear: her eight-month-old daughter had cancer.

Lulu had neuroblastoma, a solid childhood cancer. When a child like Lulu first shows symptoms, it has often progressed rapidly.

By the time Lulu was diagnosed, she had a tumour the size of a grapefruit in her abdomen. The cancer was also in her bones and bone marrow. 


Neuroblastoma has one of the lowest survival rates of all childhood cancers.

Thanks to the support of the community, we have been able to progress our research into aggressive neuroblastoma and find potential new treatments like CBL137.  Latest findings suggest that by combining CBL137 with a drug called Panobinostat, we could potentially transform the treatment of high-risk neuroblastoma, so that more children survive. We urgently need to continue our research so that we can get drugs like CBL137 and Panobinostat from the bench to the bedside.  

That moment of diagnosis changed Lulu and Josi’s lives forever. Within days, Josi watched helplessly as her baby was wheeled in for the first of many surgeries and procedures to keep her alive.

“I had to make heart-wrenching decisions that no parent should ever have to contemplate, let alone make.”

Josi, Lulu's mum

Any hope that Lulu’s ordeal would be over soon was shattered when doctors at Sydney Children's Hospital realised the tumour wasn’t responding as they had hoped. They tried a different, even more aggressive regime, with little effect. 

Lulu was reclassified as high risk and her chances of survival dramatically reduced.

After six rounds of chemotherapy, the surgeons decided to operate to remove the tumour. Because Lulu’s tumour was wrapped around her aorta, it was going to be an incredibly risky procedure. Lulu has endured chemotherapy, multiple surgeries, a transplant, radiotherapy and an immunotherapy trial. Throughout, Lulu’s smile and bravery inspired everyone around her.


While these gruelling treatments have kept her alive, they come at a terrible cost to her young body. Chemotherapy drugs are blanket treatments that kill all fast-growing cells and damage the bodies of growing children. Their legacy is brutal.

CBL137 is a targeted therapy that could significantly reduce the horrific side-effects of neuroblastoma treatment for children like Lulu as well as increase survival rates.  We desperately need your support to help find treatment approaches that will give more children a better chance of survival. 

We need to support research so brave children like Lulu can have the brightest future 

Josi, Lulu's Mum



In her short life, Lulu has had more surgeries and treatments than most of us will have in a lifetime. She took her first steps in an isolation room after a bone marrow transplant, instead of at home, surrounded by toys. But Lulu’s spirit is irrepressible. Despite never being cancer-free, this courageous little girl is determined to make the most out of every single day. 


Together, we’ve come so far, but there’s still so much to do. We urgently need to continue our research so that we can get drugs combinations like CBL137 and Panobinostat from the lab bench into clinic trial, to help brave children like Lulu

Professor Michelle Haber AM

We have the researchers, we have the technology and we have a passionate team determined to make this happen. All we need now, is your support.  


We can't do it alone. Please donate today - together we can find better ways to save the lives of brave children like Lulu.




Children’s Cancer Institute is the only independent medical research institute in Australia wholly dedicated to childhood cancer. Our focus is on translational research, making sure our discoveries are progressed into actual treatments for kids with cancer as quickly as possible.

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